Diaphragmatic Hernia Research & Exploration; Advancing Molecular Science (DHREAMS)
| Sponsor: | NHGRI |
| Enrolling: | Male and Female Patients |
| Clinic Visits: | 1 |
| Maximum Age: | 30 years old |
| IRB Number: | AAAB2063 |
| U.S. Government ID: | NCT00950118 |
| Contact: | Rebecca Rose Hernan: 646 317 6503 / rh2813@cumc.columbia.edu |
Each year more than 1,000 babies in the United States are born with a Congential Diaphragmatic Hernia (CDH). For the majority of these babies, the cause of the CDH is unknown. DHREAMS (Diaphragmatic Hernia Research & Exploration; Advancing Molecular Science) study was created to improve the understanding of the molecular genetic basis of CDH. This National Institute of Health (NIH)-funded research team is composed of health care providers and researchers across the country, coordinated at Columbia University Medical Center. Multiple medical centers are enrolling individuals and families with CDH. The knowledge gained through this research will lead to improved diagnosis, treatment, and quality of life for individuals and families with CDH.
| Do you have a child with a CDH? Or, are you currently pregnant with a child with CDH? | Yes | No |
| Has your infant been diagnosed with CDH? (If yes for #1, please select "yes") | Yes | No |
| Have you or your child had a CDH that has been repaired in the past? (If yes for #1 or #2, please select "yes") | Yes | No |
