DHREAMS: Diaphragmatic Hernia Research & Exploration; Advancing Molecular Science
Sponsor: |
NHGRI |
Enrolling: |
Male and Female Patients |
Clinic Visits: |
1 |
IRB Number: |
AAAB2063 |
U.S. Govt. ID: |
NCT00950118 |
Contact: |
Anah Kim Hetzler: 212-305-5508 / ak3578@cumc.columbia.edu |
Each year more than 1,000 babies in the United States are born with a Congenital Diaphragmatic Hernia (CDH). For the majority of these babies, the cause of the CDH is unknown. The DHREAMS (Diaphragmatic Hernia Research & Exploration; Advancing Molecular Science) study was created to improve the understanding of the molecular genetic basis of CDH. This National Institute of Health (NIH)-funded research team is composed of healthcare providers and researchers across the country, coordinated at Columbia University Irving Medical Center. Multiple medical centers around the world are enrolling individuals and families with CDH. The knowledge gained through this research will lead to improved diagnosis, treatment, and quality of life for individuals and families with CDH.
Investigator
Yufeng Shen, PhD
Do you have a child with a CDH? Or, are you currently pregnant with a child with CDH? |
Yes |
No |
Has your infant been diagnosed with CDH? (If yes for #1, please select "yes") |
Yes |
No |
Have you or your child had a CDH that has been repaired in the past? (If yes for #1 or #2, please select "yes") |
Yes |
No |