Small Fiber Neuropathy in Juvenile Fibromyalgia
Sponsor: |
The Childhood Arthritis and Rheumatology Research |
Enrolling: |
Male and Female Patients |
IRB Number: |
AAAR3311 |
Contact: |
Alexis Boneparth: 212-305-9735 / ab4459@cumc.columbia.edu |
Juvenile fibromyalgia (JFM) is a cause of chronic, whole-body pain. The cause of JFM is unknown. One of the possible causes of JFM is a problem with nerves called "small fiber neuropathy." This is a problem where small nerve fibers in the skin are not working properly and patients can have pain as a result. Recent studies have found evidence of small fiber neuropathy in adults with fibromyalgia. We don't know if the same is true in pediatric patients who have JFM. The primary way to diagnose small fiber neuropathy is by performing a skin biopsy to look at the small nerve fibers in the skin. Participants in this study will be asked to answer questions about their symptoms on an online survey. If they meet criteria for diagnosis of JFM, they will be eligible for a second part of the study, which will involve coming to CUMC for a skin biopsy.
This study is closed
Investigator
Alexis Boneparth, MD
Do you or your child have juvenile fibromyalgia (JFM)? |
Yes |
No |