Young, Empowered & Strong (YES): A web-based patient-reported symptom monitoring and self-management portal for adolescent and young adult breast cancer survivors
Study of Symptom Monitoring using Young, Empowered & Strong (YES) Web Portal for Breast Cancer Survivors
Sponsor: NIH
Enrolling: Female Patients Only
IRB Number: AAAT6834
Contact: Research Nurse Navigator: 212-342-5162 / cancerclinicaltrials@cumc.columbia.edu
Additional Study Information: The Young, Empowered & Strong (YES) study is opened to women who were diagnosed with breast cancer between the ages of 15 and 39 years. Women will need to be within 3 years of the end of early active treatment (e.g. surgery, chemotherapy not including HER2-directed therapy, radiation), and have no know evidence of breast cancer recurrence. The study team designed a web portal, called YES(Young, Empowered & Strong), with information for breast cancer survivors. A web portal is similar to a website where people go for a specific kind of information. We want to find out if using the YES portal can improve the quality of life of young breast cancer survivors. We are also trying to find out if the YESportal is helpful to survivors when they have symptoms that go along with breast cancer treatments, side effects, or other concerns. Women will be in the study for 9 months. Women will be randomized to one of two groups: Group A or Group B. Women in Group A will have access to the YES portal during the 9months they are in the study. At the end of their time in the study, women in Group B will be given access to the portal for 3 months. In the YES research study, we are using a web-based portal (website)to help monitor issues or symptoms women with breast cancer may experience. Women can get to the portal from a smartphone, tablet, laptop, or desktop computer. The YES portal also provides information and resources on topics that may be relevant to breast cancer patients. You will receive assessment reminders as well as informative and/or fun engaging email/text messages. There is a chat feature to create a community among other young breast cancer survivors within the portal. We will also share potential research opportunities with those using the portal.
Investigator
Dawn Hershman, MD
Do You Qualify?
Are between the ages of 15-39? Yes No
Have you been diagnosed with breast cancer within the last 3 years? Yes No
Are you willing to provide a cell phone number and/or email address to receive email/text message from the study team? Yes No
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For more information, please contact:
Research Nurse Navigator
cancerclinicaltrials@cumc.columbia.edu
212-342-5162