Advancing Research and Treatment for Frontotemporal Lobar Degeneration (ARTFL)
Sponsor: |
National Institutes of Health |
Enrolling: |
Male and Female Patients |
IRB Number: |
AAAP0951 |
U.S. Govt. ID: |
NCT02365922 |
Contact: |
Masood Manoochehri: 212-305-5710 / mm2626@cumc.columbia.edu |
This is an observational study designed to collect information about Frontotemporal Lobar Degeneration (FTLD) disorders. FTLD is a term for a related group of neurodegenerative disorders that cause impairments in personality, cognitive ability, language, and motor function. This study aims to build a reliable clinical research network to support treatment and prevention clinical trials for FTLD. The study has multiple projects, and eligible participants may include both individuals diagnosed with an FTLD disorder as well as members of families with a history of FTLD disorders, such as Frontotemporal Dementia (FTD), Primary Progressive Aphasia (PPA), Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration Syndrome (CBD), or Frontotemporal Dementia with Amyotrophic Lateral Sclerosis (FTD-ALS).
This study is closed
Investigator
Matthew Harms, MD
Do you have an FTLD disorder or have a family member with and FTLD disorder? |
Yes |
No |
Are you able to walk (or walk with assistance)? |
Yes |
No |
Do you have a friend or family member who can accompany you to visits? |
Yes |
No |
Do you speak English? |
Yes |
No |