Columbia Cerebral Palsy Center Registry
Sponsor: |
Weinberg Family Cerebral Palsy Center |
Enrolling: |
Male and Female Patients |
IRB Number: |
AAAI1682 |
Contact: |
Jason Carmel: 212-305-9367 / cpresearch@cumc.columbia.edu |
The Weinberg Family Cerebral Palsy Center's (WFCPC) research team maintains a cerebral palsy (CP) patient registry of more than 1,000 enrolled patients. This registry contains information collected from children and adults with CP. The goal of the registry is to help us learn more about CP and neuromuscular diseases, to understand the quality of life of patients with these diseases, and to study different treatment and surgical options. The registry allows our researchers to capture a more complete picture than ever of the full scope of patients living with CP and to investigate long-term care. With 10 to 15 years of data, it is now possible to study cerebral palsy across the lifespan.
Investigator
Jason Carmel, MD, PhD
Do you or your dependent have a diagnosis of cerebral palsy or another neuromuscular disease? |
Yes |
No |